Friday, March 26, 2010

Day Sixty-four

 "Now, our God, we give you thanks, and praise your glorious name." 1 Chronicles 29:13

The treatment went well today.  Thank you, Lord!  Ryan was comfortable at the doctor's office, he didn't fear the needle (didn't like it though), and finished the treatment like it was just another thing to do today.  His counts were down, and we talked to the doctor about a transfusion again.  He said that he might need one (better than before when we thought he'd need at least two), but then again he might not.  We'll pray on that.  We also talked about the next scans, which we will try to do in April at the next big treatment.  We'll have to see if that can be done because in-patient procedures can't be scheduled until Ryan is admitted and he will only be there for 1 1/2 days.  So, if that doesn't work, we'll schedule it as an outpatient procedure the following week.

Today was a big day at the clinic.  It was Superhero Kids Day and there was a lot of people.

Mirjan was supposed to be interviewed by the local news, but when we finished the treatment they were gone.  The hospital communications director apologized, but Mirjan wasn't upset.  I had already nicknamed her "Hollywood" and was sure that this was her big break. :)   I took a picture of her before the interview time, so we would have a "before superstar picture."

John and Samia had gotten a fireman hoodie from the St. Baldrick's Fair the week before, and Ryan loves it!  God's love displayed.  John also got him a bowling set because they bowl every week.  I think Ryan ended up trading it in for a set a marbles, which I played with him several times today.  He likes to make up his own rules, and as a result, he won every time. 


The firefighters were there today too, and Ryan got a helmut and a picture with the heroes.


Here are some other random photos from today.  Emma found her belly button and has to show me every time she sees me. 





When we got home, Ryan was tired and ended up dozing on the couch watching a movie.  By the evening, his energy returned and he was having a good time.  He likes to play General John, which is me acting like a drill sergeant and talking loud nose to nose with him.  So, we did that about 100 times tonight. 

Mirjan chased down a short-change issue today and finally got it resolved.  First, she didn't get the interview that they called her about, and then she was shortchanged and it took a while to resolve it.  Oh, she did interview for the Superhero Kids organization.  I'm not sure what will happen with that, but it was a good thing.  Smile, Mirjan, I love you!

Father, thank you for a safe treatment for Ryan.  Thank you for giving him courage and confidence and really making the needle a non-issue for him today.  Thank you for the love and caring displayed through the volunteers and medical staff.  It is amazing how your love through others is truly changing lives at the hospital. Lord, I ask that you continue to hold Ryan in your hands, keep him healthy, and continue to heal his little body.  In Jesus' name I pray.  Amen.

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